About iSACRA

family with infant who has CRS

This organization is a 501(c)(3) nonprofit based in the USA and is the world’s only international organization serving those who have the rare condition of sacral agenesis or caudal regression syndrome (SA/CRS). This website is a resource for those with this condition and their families as well as for medical professionals, educators, and the general public. It contains information about the condition, its characteristics, and its treatments and provides a glimpse into the lives and perspectives of individuals living and thriving with this condition. A wide range of resources and information can be found on this site. The information contained on this site, and the links provided, are not intended to replace professional medical advice but hopefully will be helpful in advancing an understanding of this condition as experienced by those who live with it and are impacted by it.