(The International Sacral Agenesis/Caudal Regression Association) was founded in 2012 by a group of dedicated volunteers who are intimately familiar with SA/CRS. We include two people with SA/CRS and three parents of children with SA/CRS.

Our group grew out of a shared desire to provide a sense of community for those with SA/CRS and their families, where no such community ever existed before. The group began with diverse efforts on various social media outlets such as Facebook, Yahoo, and the like, but we knew that in order to get our message out to a wide community of people with SA/CRS, their parents and loved ones, and the medical community, we would have to grow beyond simple social networking groups. And so was born.


provides support and information to persons with sacral agenesis/caudal regression syndrome and their families worldwide. promotes awareness and collaborates in research and advocacy to enhance the quality of life of persons with this condition and to advance medical knowledge.

The International Sacral Agenesis/Caudal Regression Association is a 501(c)(3) organization.

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