CoRDS/iSACRA PATIENT REGISTRY NOW LIVE!
The first ever gathering of information about sacral agenesis/caudal regression syndrome (SA/CRS) on a large and wordwide scale is now
Read moreAuthor: Phyllis Rogers
SERVE! The AMBASSADOR Impact: Applications NOW Open
The iSACRA Ambassador committee includes up to 30 motivated individuals, including 3 iSACRA board representatives, seeking to help iSACRA accomplish
Read moreIs SA/CRS Caused by Diabetes?
The National Organization for Rare Disorders tells us: One risk factor that has been identified for caudal regression syndrome is
Read moreWhat is Sacral Agenesis / Caudal Regression Syndrome?
Home Sacral agenesis, lumbosacral agenesis, and caudal regression syndrome are three terms that are often used interchangeably. Sacral agenesis refers to a condition in which
Read moreThe Power of Language
Have you ever considered how much the words we use demonstrate our attitudes and influence the attitudes of others? If
Read moreTalking with Your Child About Bullying
If the physical differences your child has because of the condition of SA/CRS appear to cause bullying or staring, there
Read moreMake a Donation
Donate
Read moreiSACRA Flyer
Click here to download and print an isacra flyer Use the flyer to help others understand SA/CRS. Bring it to doctors
Read moreBrief Information on SA/CRS
Sacral agenesis, also called by several other names such as “caudal regression syndrome,” is a birth condition in which the lower
Read moreJoin our Facebook Group
Join a global community of over 1000 individuals and families sharing information and supporting one another. The iSACRA Facebook group
Read more