is just getting off the ground, and we can use help in so many ways!


values our members, and we want to be able to keep in touch. We have set up a mailing list that will allow us to keep you abreast of our latest news. Please consider signing up today!

We also maintain an active Facebook group with over 400 members, and growing every day. Due to the private nature of the issues surrounding SA/CRS, our Facebook group is open by invitation only. Please contact us if you would like to be invited.


Every great organization is built by great volunteers! We’ll need help in all sorts of different ways. Check our volunteer postings page for information about how you can help.

Show your support

has merchandise for sale to allow you to show your support and solidarity with our cause. Check it out!


Above all, we need financial support. The costs of forming a national non-profit organization can be staggering. Just getting the legal paperwork in place for all 50 states will cost over $3000! Every cent helps us move toward our goals. Please consider donating today.

The International Sacral Agenesis/Caudal Regression Association is a 501(c)(3) organization.

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