has big plans in mind! We hope you’ll join us to help make them a reality.

Short term goals include:
  • Continuing online support through the Facebook group
  • This new website containing a clearinghouse of information related to SA/CRS
  • Fun things like bracelets, pins, and car magnets
  • Newsletters (online, print, or both)
  • Other publications for new parents; publications to educate medical professionals and encourage them to refer new parents to us
  • Mentoring of new parents by parents who have been through what you’re going through
  • Mentoring of children with SA/CRS by older children and adults with SA/CRS
  • Regional meetings of group members
Long-range goals include:
  • National meetings. Eventually, we want these meetings to include doctors who specialize in areas related to treatment of people with CRS/SA.
  • Scholarships for students with SA/CRS
  • Grants-in-aid for medical care, surgeries, and adaptive equipment
  • Translations of informational packets into various other languages
  • Medical advice through a Medical Advisory Committee
  • Funding for research about what works in treating people with SA/CRS — what works in orthopedics, urology, etc.

We think this organization has a lot to offer its members. We encourage your feedback and any help anyone can provide. Thanks!

— Your Board

If you would like to join ’s Facebook group, please fill in the sign-up form.


would love to keep in touch with you. We plan to create a periodic newsletter highlighting our latest news, activities and upcoming events. If you would like to be put on our mailing list to receive our newsletter and announcements of special activities, please click below.

The International Sacral Agenesis/Caudal Regression Association is a 501(c)(3) organization.

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