Here are some websites with useful information to the iSACRA community:
Personal reflections and blogs
- Danielle Shaw’s blog, loaded with
resources and links on various SA/CRS-related topics.
- Julie Hemker blogs on
all aspects of living with SA/CRS.
- Ben &
Kindle's blog about their journey with SA/CRS
Organizations of interest
Here are some helpful links about education and children with
Preschool and Day Care
504 Plans and Universal Design
Here we provide links to general medical information about SA/CRS, and to
information specific to the conditions that can accompany SA/CRS.
In addition to the defining orthopedic issue of Sacral Agenesis (partial
or complete lack of sacral vertebrae), SA/CRS is often accompanied by
orthopedic issues in the legs, including club feet. The following links
have useful information for people dealing with these issues:
A great deal of research and scholarly reporting has appeared in
the medical journals over the years regarding SA/CRS. We present
here only a brief sampling.
- Knight, Brian. (August 2011) "Caudal Regression Syndrome: A Case Report". AANA Journal.
79(4). American Association of Nurse
- Karacalioglu, AO; Soylu, K; Emer, Ö; Ayan, A; Ozguven, M.
(September 2008). "Incidental finding of a
sacral hemiagenesis on the 99mTc-MDP bone scan as a casual
(sic) regression syndrome type II". Hellenic Journal of Nuclear
- Guille, JT; Benevides, R; Cuevas DeAlba, C; Siriram, V; Kumar,
SJ. (January 2002) "Lumbosacral Agenesis:
A New Classification Correlating Spinal Deformity and Ambulatory
Potential". The Journal of Bone & Joint Surgery
- Lynch, SA; Wang, Y; Strachan, T; Burn, J; Lindsay, S.
(August 2000) "Autosomal
dominant sacral agenesis: Currarino syndrome". Journal
of Medical Genetics. 37:561-566
- Pang, D. (May 1993) "Sacral Agenesis and Caudal Spinal Cord Malformations"
- Stanley, JK; Owen, R; Koff, S. (November 1979) "Congenital Sacral Anomalies".
Journal of Bone and Joint Surgery 61-B(4).