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November 2013

A note from our President

I am to thrilled to bring you our very first iSACRA newsletter. It is packed full of information that I think many of you can enjoy and learn from. I want to thank our hard working newsletter committee for putting all of this together. Phyllis R., Danielle S., Daniel P., Cyndie M., Julie H., Candice L. and Liz D., and also thanks to Dan C. who takes what our newsletter committee has written and turns it into an e-newsletter so that all of you can read it. In this issue, you will see a theme of education. Also, we will feature a "meet our members" article and in this issue we meet the Seversons. Each newsletter will feature a theme and a "meet our members" article as well as other organizational information. The newsletter committee welcomes your ideas and your contributions to the newsletter. Contact Phyllis.Rogers@isacra.org to provide feedback, submit articles or provide theme ideas. Enjoy, everyone!

--Jessica Rogers, President

Meet our Members: The Seversons

In each newsletter, we plan to introduce one of our member families. This month, we introduce the Seversons, whose son Jovan has SA/CRS. More…

504 Plan for a Child with Sacral Agenesis/Caudal Regression Syndrome

A 504 Plan is a document that spells out the agreement between parents and their child's school regarding their child's special needs. Unlike an Individualized Education Plan (IEP) that focuses on a student's unique learning needs, a 504 Plan is better suited for children with no special intellectual needs, but with specialized physical and medical needs. Danielle Shaw outlines how you as a parent can advocate for your child's needs at school, and how the 504 Plan can be structured to help assure those needs are met. More…

Educational Services for Canadian Children with Special Needs: The Examples of Quebec and Ontario

In Canada, education is considered a fundamental law for the common good. We examine some of the laws governing education of disabled children with specific examples of how those laws apply to children with SA/CRS. More…

Seven Strategies: Tips for Conflict Resolution at School

Whether it is your child's first day of preschool or high school, there is always an extra layer of planning that accompanies going to school when a student has SA/CRS. Issues range from safety and mobility access to social acceptance and teacher attitude. Because it is impossible to plan for every issue, there will always be some surprises and some frustrations. Predicting and resolving issues on behalf of your child can feel overwhelming for any parent. Here are seven survival tips to guide you along the path of advocating for your child at school. More…

Self-Advocacy in Children

One of our members tells about an early experience in self-advocacy, a skill all children (and adults) with SA/CRS need to develop. More…

Accommodations at School for Wheelchair Users: One Student’s Experiences

What is it like to be a student who uses a wheelchair? Schools are required to provide accommodations so students with disabilities can participate in and access the educational environment. When it comes to receiving assistance and accommodations at school, I am a fan of the phrase “less is more.” I have learned a lot from having to think about obstacles and come up with creative solutions. The process of encountering barriers and navigating around them or resolving them is something I expect will be part of my life as an adult, so I think school is a good place to learn these skills. More…

Examples of IEP Goals for Students with SA/CRS

Although some students with SA/CRS have 504 Plans in school, others have IEPs. Having an IEP does not mean that the child has academic delays, although an IEP is usually based on providing services to remedy academic needs or access issues. Here are some examples of IEP educational goals outside the purely academic areas that may apply to children with SA/CRS. More…

New Adult and Teen Groups for Those with SA/CRS

In addition to our main Facebook support group, we have started two smaller groups: one for adults with SA/CRS and one for our teen members. Read all about them. More…

Special Education in the USA: Important Laws, Terms, and Concepts to Know

There are so many abbreviations and special terms used in the school system. Parents may feel like they are lost in a sea of new vocabulary. Here are some definitions that may help you stay afloat. More…

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