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Fundraising for

Hi, !

I wanted to update all of you in this e-newsletter about our fundraising capabilities and what we as a group can do to help raise funds to reach our immediate and long-term goals, which I’ll give a general outline of in a little bit.

First I want to talk about fundraising and where we can and can’t yet fundraise. To have a fundraiser in your state, we must first be registered as a charitable organization in that state. Below you’ll find a list of states where we are already registered and a list of states that we are working on registering in.

Where We're Registered

Alaska, Arizona, Arkansas, California, Colorado, Connecticut, Florida, Georgia, Hawaii, Idaho, Illinois, Indiana, Iowa, Kansas, Louisiana, Maine, Michigan, Missouri, Montana, North Carolina, Nebraska, New Jersey, New York, Ohio, Oklahoma, Pennsylvania, Rhode Island, South Carolina, Texas, Virginia, Washington (state), West Virginia, Wisconsin, and Wyoming.

That makes a total of 34 states that we can raise funds in and help iSACRA reach its goals.

Where We're Not Yet Registered

Here is a list of the states we’re not yet registered in. Some states require a fee for registration, and some do not. Our executive director, Dan Curry, is working on completing the registration process in the states that do not have a fee to register. When we have the funds to do, so we’ll begin registering in the remaining states that do require a fee.

No-fee states include Delaware,* Kentucky, Maryland, Nevada, New Mexico, Oregon, South Dakota, and Vermont.

*It does not cost anything to register in Delaware, but we are required to have a Delaware resident registered agent, which runs about $100/yr.

I’m waiting on information for Washington, DC, and whether it’s a “fee” or “no-fee” state.

States with fees are:

Alabama: $25
Massachusetts: $35
Mississippi: $50
New Hampshire: $25
North Dakota: $85
Tennessee: $50
Utah: $100

You may be thinking, “What can I do to help?” Well, there are a number of things you can do to help reach its short- and long term-goals. This year we’ve chosen as our short-term goal raising enough money to make professional educational packets for parents, doctors, and educators. This will go a long way toward getting more education about SA/CRS out there into the hands of the medical and educational community as well as informing new parents.

Longer term goals include central and regional meetings, summer camps, and more.

Anyone anywhere in the United States can donate to using the donate button on our website. We are a legal 501(c)(3) nonprofit in the United States. No matter how much or how little anyone can give, every dollar counts!

Anyone who is good at researching grants and writing can help us search for and write grants. Those will really help us get off the ground and start racing toward our immediate as well as our long-term goals.

For those in states that are eligible to fundraise, we have quite a few things you can do to help:

  • We have instructions on how to set up coin jars for your favorite restaurant or other places you frequent with flyers that explain what is and what we do.
  • You can purchase bulk packages of bracelets or magnetic car ribbons and sell them to family and friends and then donate the proceeds back to .
  • You can talk to your child’s school about a fun run or some other kind of fundraising activity.
  • You can talk to the company you work for to see if it has a matching donation policy.

If you’re not good at “selling,” then help us come up with other creative, fun ideas! Those are just as important!

You can also purchase ribbons, bracelets, or some of the items from our CafePress store. We get proceeds from every purchase. Visit ’s CafePress store to check out the items for sale.

Also make sure you’re signed up for Amazon Smiles so your purchases from Amazon count toward donations to . Go to Amazon Smiles and choose as your charity of choice.

Anyone who has any questions about the above information is free to email me at I’ll be more than happy to help you in any way that I can.

If you have other ideas you’d like to share, we’d love to hear them. The more you get involved, the better off will be, and the more we can do for all of you!

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The International Sacral Agenesis/Caudal Regression Association is a 501(c)(3) organization.

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