The Story of iSACRA
The story of iSACRA is one of individuals coming together to create a community. It took Jahna Berry, an adult
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What is Sacral Agenesis / Caudal Regression Syndrome?
Home Sacral agenesis, lumbosacral agenesis, and caudal regression syndrome are three terms that are often used interchangeably. Sacral agenesis refers to a condition in which
Read moreFor Adults with SA/CRS
Employment laws: USA The ADA: Your Employment Rights as an Individual With a Disability USA The Equal Opportunity Employment Commission USA
Read moreComparing Manual and Power Wheelchair Options
Deciding to order a power/motorized wheelchair or a manual chair is a highly individual decision. Some individuals use both
Read moreGift Matching
Contributed by Pamela Harbarth The company I work for offers an individual gift matching program, and I was able to
Read moreOur Stories
Click on a story title below to read a story about a child with sacral agenesis/caudal regression syndrome. (See also,
Read moreAthletes Born with Sacral Agenesis/Caudal Regression Syndrome
(This is a partial list; there are many more athletes and developing athletes who have SA/CRS. If you have a
Read more10 Good Things About SA/CRS
There are at least 10 positive things to remember about SA/CRS. The list may vary from person to person, but
Read moreTalking to Your Child About Bullying
If your child’s physical difference appears to cause staring or bullying, there are 5 things that parents can do to
Read moreQuestions Parents Ask
Diagnosis comes as a shock, regardless of whether the diagnosis happens during pregnancy, at birth, or at a later time. Common
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