Welcome to !

As the founder and president of , I am happy to welcome you to this site offering current information, resources and support for people with sacral agenesis (SA) or caudal regression syndrome (CRS) and their families. I myself am a young person with SA/CRS, and we have members from all over the world. We are excited to see this organization grow.

Jessica Rogers


If you are a parent or expectant parent who has just been given a diagnosis of sacral agenesis or caudal regression syndrome for your child, or if you are an adult or young adult with SA/CRS, we're so glad you've found us! We are here to provide you information and support. We have a great Facebook support group that is almost 400 strong with members from all over the world! Please join us! We'd love to get to know you!

Please visit our New Parents page if you need information about your SA/CRS child, and please contact us if you would like to join our Facebook support group.

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Meet the Board

The Board of Directors of wants to do what best meets the needs of our members and visitors. Come meet us and get in touch!

Meet our members

Some of our SA/CRS families have shared their stories with us. Find out who they are and share your story too!

What is SA/CRS?

Sacral agenesis/caudal regression syndrome (SA/CRS) refers to a range of conditions involving the nonformation or underformation of the lower spine (the sacral or lumboscral region) along with other conditions (the syndrome) that accompanies it. (More)

The International Sacral Agenesis/Caudal Regression Association is a 501(c)(3) organization.

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