Blogs from Individuals with SA/CRS or Parents of Children with SA/CRS

Personal Reflections and Blogs

  • Danielle Shaw, the parent of a son with SA/CRS offers a blog loaded with resources and links on various SA/CRS-related topics.
  • Julie Hemker, and adult with SA/CRS blogs on all aspects of living with SA/CRS.
  • Ben & Kindle’s blog share their journey parenting a child with SA/CRS
  • Namine’s Strength   Follow Namine, a child with SA/CRS, in her adventures through life