JOIN US! iSACRA Facebook Group

Join a global community of more than 1,000 individuals and families sharing information and supporting one another.

The iSACRA Facebook group is open to:

  • Individuals age 12 and older who have the condition of SA/CRS
  • Parents, expectant parents, foster and adoptive parents, and primary caretakers of individuals with SA/CRS
  • Spouses and significant others of individuals with SA/CRS
  • (With student’s family or patient permission), medical or educational professionals

(If you do not meet these criteria, we encourage you to explore all of the information on this website. You may also email us at with specific questions. )

Interested in joining us? (We do not share your personal information with any outside party.)

Now you can go straight to the Facebook page and request to be added to the private the iSACRA Facebook group page.   You will be asked questions similar to those above when you asked to be added. For fastest processing, please set your facebook page to allow us to “friend” your page.