Join a global community of more than 1,400 individuals and families sharing information and supporting one another.
The iSACRA Facebook group is open to:
- Individuals age 12 years of ge and older who have SA/CRS
- Up to two per individual with SA/CRS, those who are parents, expectant parents, foster and adoptive parents, and primary caretakers of individuals with SA/CRS, spouses and significant others of individuals with SA/CRS
Medical or educational professionals (with permission of the person with SA/CRS or, if a minor, the child’s guardian)
What does iSACRA offer you?
- Connection with those who have similar experiences.
- Opportunities to learn from experienced adults living and thriving with SA/CRS.
- Information about developmental, educational, medical, and social issues concerning those with SA/CRS.
- Buddy boxes for those preparing to have medical procedures.
- Postage reimbursement for equiptment and supply exchange.
- Free webinars provided by members of our medical advisory board, offering you personal interactions where your specific questions can be addressed by medical specialists with experience in treating those with SA/CRS.
- Scholarships for individuals to attend NORD (National Organization of Rare Disorders) national and regional conferences.
- Scholarships for college students.
- Downloadable childrens book “My Life with Sacral Agenesis”.
- Downloadable brochure.
- Local meet ups, and financial support for hosting local meet ups in your area.
- And so much more.
If you do not meet the criteria for our Facebook group, we still encourage you to explore all of the information availabe to you on this website. You may also email us at contact@isacra.org with specific questions.
Interested in joining us? (We do not share your personal information with any outside party.)
Now you can go straight to the Facebook page and request to be added to the private the iSACRA Facebook group page. You will be asked questions similar to those above when you asked to be added. For fastest processing. Please set your Facebook page to allow us to friend you.