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Sunday, December 15, 2024
Latest:
CoRDS/iSACRA PATIENT REGISTRY NOW LIVE!
SERVE! The AMBASSADOR Impact: Applications NOW Open
Is SA/CRS Caused by Diabetes?
What is Sacral Agenesis / Caudal Regression Syndrome?
The Power of Language
The International Sacral Agenesis/Caudal Regression Association
Informing and connecting the sacral agenesis/caudal regression syndrome community
About iSACRA
Mission
A Letter from iSACRA
Organizational Leadership: Board and Officers
SERVE! The iSACRA Ambassador Impact: Applications now open
The Story of iSACRA
Medical Advisory Board
Donate
Privacy Statement and Disclosures
Volunteer
Contact
Medical
What is Sacral Agenesis/Caudal Regression Syndrome?
Understanding the Spine and Spinal Cord
What Causes SA/CRS?
Diagnosis
Diagnosis During Pregnancy: Experiences and Research
Diagnosis at Birth: Experiences and Research
Diagnosis in Later Years: Experience and Research
Characteristics of Sacral Agenesis/Caudal Regression Syndrome
Chart of Characteristics of SA/CRS
Vocabulary and Abbreviations Explained
Height and Weight Chart
VACTERL and SA/CRS, one family’s experience
Neurology (Treatment of the Central Nervous System and Spinal Cord)
Orthopedics (Treatment of the Musculoskeletal System)
Shoe Recommendations for Braces Wearers
Serial Casting and Surgery for Club Feet
Walking: Possibilities and Perspectives
Billy’s Story: Leg length discrepancy
Jahna’s Story: At-knee leg disarticulation
Considerations for At-Knee Disarticulation Surgery
Will’s Story: Bilateral Vertical Talus and our journey through corrective surgery
Urology (the Bladder and Kidneys)
Neurogenic Bladder Treatments and Procedures
Bladder and Kidney Function Tests and Testing Schedules
Gastroenterology (Treatment of the Bowel and Intestines)
Colorectal Centers
Living Fully with SA/CRS
Adults with SA/CRS, College, Career, Pregnancy, and More!
Educational Laws, Advocacy, and College Resources
The Power of Language
Sports, Recreation, and Travel
The Competitive Edge
The iSACRA Sports Gallery
Travel and Exchange Programs for Individuals with Physical Disabilities
Hobbies Give Me Confidence in Myself!
Blogs from Individuals with SA/CRS or Parents of Children with SA/CRS
SA/CRS in the Media
Information & Resources
For Parents
Questions Parents Ask
Some Advice from the Pros
Hospital Visits and Appointments
Staring?
Talking to Your Child About Bullying
Parent Mentorships
Our Stories
For Children and Teens
10 Good Things About SA/CRS
Children’s ebook “My Life with Sacral Agenesis: A children’s story”
Meet Some Friends
Connecting Kids
Summer Camps and Holidays
For Doctors
Delivering a Diagnosis of SA/CRS
Unique Considerations for Care and Treatment of Individuals with SA/CRS
Unique Orthopedic Considerations
Wheelchairs and walking: Physical Therapy and Mobility Training
All About Wheelchairs and Wheelchair Development Skills
All About Walking
Mobility Videos: Walking, Wheelchair Skills, and Daily Activities
For Teachers
Disability sports and inclusive sports: For Coaches and Athletes
Physically Disabled Athletes at School
“Paralympics” or “Special Olympics”: What is the difference?
Disability and Adaptive Sports Organization Resources, Wheelchair Resources, and Sports Equipment Resources
For Adults with SA/CRS
Financial Resources
Innovations
Home Modifications
Community Connection
iSACRA Public Facebook Page
JOIN US! iSACRA Facebook Group
iSACRA AMBASSADOR
Equipment and Supplies Exchange Program
Informational Webinars and Meet-Ups
Webshop
iSACRA Bonfire store
IRS Determination Letter
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