agenesis – Page 3 – The International Sacral Agenesis/Caudal Regression Association

About iSACRA

iSACRA is an organization supporting individuals with sacral agenesis or caudal regression syndrome

Contact

Please note we will not share your contact or personal information with outside parties without your written permission. Please allow

Organizational Leadership: Board and Officers

iSACRA Board Members, June 2024Colleen Wright, President Colleen was born and raised in Kentucky, USA. She graduated from Bellarmine

Sacral Agenesis / Caudal Regression Syndrome

Sacral Agenesis, or Caudal Regression Syndrome is a rare condition meaning that part or all of the lower spine did not form.

Mission

iSACRA provides support and information to persons with sacral agenesis/caudal regression syndrome and their families worldwide. iSACRA promotes awareness

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