For Doctors

Many doctors have never encountered an individual with sacral agenesis/caudal regression syndrome (SA/CRS).  There are no known specialists for this

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For Parents

Dear Parents of Children with SA/CRS, Hello, new parents! I know you are probably very concerned in learning that your

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A Letter from iSACRA

With more than 1,500 individuals and families connected worldwide, iSACRA is proud to be the only international organization for people

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Volunteer

iSACRA is always seeking volunteers for various activities.  If you have a talent or an interest in serving, please contact

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Donate

Donate Why do we raise funds? When you have a rare condition, you know all too well that: Lack of

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Medical Advisory Board

   Pediatric Specialist Alexander Van Speybroeck, MD, MPH, is Medical Director for the Spina Bifida Programs at Children’s Hospital Los

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About iSACRA

iSACRA is an organization supporting individuals with sacral agenesis or caudal regression syndrome

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Contact

Please note we will not share your contact or personal information with outside parties without your written permission.  Please allow

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