Our Stories

Click on a story title below to read a story about a child with sacral agenesis/caudal regression syndrome.  (See also,

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Questions Parents Ask

Diagnosis comes as a shock, regardless of whether the diagnosis happens during pregnancy, at birth, or at a later time. Common

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For Doctors

Many doctors have never encountered an individual with sacral agenesis/caudal regression syndrome (SA/CRS).  There are no known specialists for this

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For Parents

Dear Parents of Children with SA/CRS, Hello, new parents! I know you are probably very concerned in learning that your

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